Our Mission

Narwhal Association primarily provides emotional and practical support to parents and families facing rare diseases and autism, ensuring that no one goes through the hardest moments alone. Our mission is to build a community of understanding and support through a SOS hotline, free counseling sessions, and a peer-to-peer network of parents who support one another.

Our vision is a society where rare diseases and autism are not barriers to a dignified and fulfilling life. We strive to build a global support network where families have access to research, innovative therapies, and education, as well as emotional and creative resources that help them find strength and joy in everyday challenges. We want every child to have the opportunity to celebrate their achievements, develop their potential, and inspire others through their courageous journey.

Narwhal Association recognizes that many parents and caregivers of children with rare diseases and autism go through an extremely difficult journey, often without support from family, friends, or the system. Our organization seeks to provide a safe support network for those who feel lonely and exhausted in their daily struggles.